So many times as caregivers, there is a high level of frustration when it appears that there are no other options, no other roads to take, and no help in sight. Kelly's Choice is here to help you through those times by providing you with resources.
Changes soon to come...
The intent of the transition plan is to demonstrate how the state will bring waiver services into compliance with the settings requirements contained in the CMS Final Regulations on Home and Community Based Services (79 FR 2947) by March 2019.
This notice also serves to open the 30 day public comment period, which begins on March 7, 2016 and closes April 7, 2016 at 5:00pm Eastern Standard Time (EST). The statewide transition plan can be located at:
· Statewide Waiver Transition Plan: http://www.dmas.virginia.gov/Content_pgs/HCBS.aspx OR http://www.dbhds.virginia.gov/professionals-and-service-providers/developmental-disability-services-for-providers; OR contact DMAS at 804-786-7029 and request that a copy of the Plan be mailed.
Instructions for Public Comment Submission:
Electronic Submission - comments may be sent within the body of an email or placed within a Microsoft Word document and submitted as an email attachment to: HCBSComments@dmas.virginia.gov OR MyLifeMyCommunity@dbhds.virginia.gov.
Or, submit via US postal mail to:
Department of Medical Assistance Services
600 East Broad Street
Richmond, Virginia 23219
ATT: HCBS Final Regulations
Or, Fax to: Teri Morgan, 804-612-0050
The DBHDS Vision: A Life of Possibilities for All Virginians
This is a notice from the DBHDS Waiver Updates e-mail distribution list. You are receiving this e-mail communication because you requested to receive updates and targeted information from the department related to the Waiver Redesign. If you do not wish to receive future communication from this list – please respond to this message and type “UNSUBSCRIBE” in the subject field.
What To Do First?
Caring for a loved one
Once your loved one has been diagnosed with a medical condition or disability it is important for you the caregiver to do several things. The most important is learning everything you possibly can about your loved ones immediate day-to-day personal care needs. Learn what medical requirements your loved one has and become accomplished in performing those tasks. Find out about the medications your loved ones may need or other medical treatments required. Stay in close contact with your love ones, physician and his/her nursing staff. They should be one of your most valuable resources in learning what you need to do for your loved ones daily care needs.
Caring for a child/newborn
Parents of a newborn or toddler newly diagnosed with a medical condition or disability are often overwhelmed by the new and unfamiliar responsibilities they face, feeling a sense of inadequacy and isolation. Some feel guilt or anger over circumstances of which they have no control. It is important to know that even if your infant or toddler has a disability it is not the end of the world. It is time to roll up your sleeves and get back on track!
One important item a parent/caregiver must learn early when raising a child with a disability is the child has the same right to SELF-DETERMINATION as any other child. What is Self-Determination? Self-Determination is the right to build your own dreams and make them come true regardless of physical or mental condition. It is important that persons with disabilities be allowed to live the fullest life they possibly can. Start early by allowing your child to make as many choices and decisions as they can possibly make themselves. This is an important skill to have later in life.
The next important step is enrolling your child in the appropriate Early Intervention Program.
Family Caregiving: The Facts
- More than 34 million unpaid caregivers provide care to someone age 18 and older who are ill or has a disability (AARP, 2008)
- An estimated 21% of households in the United States are impacted by caregiving responsibilities (NAC, 2004).
- Unpaid caregivers provide an estimated 90% of the long-term care (IOM, 2008)
- The majority (83%) are family caregivers—unpaid persons such as family members, friends, and neighbors of all ages who are providing care for a relative (FCA, 2005)
- The typical caregiver is a 46 year old woman with some college experience and provides more than 20 hours of care each week to her mother (NAC, 2004).
- The out-of-pocket costs for caregivers who are caring for someone who was age 50 or older averaged $5,531 in 2007. About 37% of caregivers for someone age 50 and older reduced their work hours or quit their job in 2007 (AARP, 2008).
- Caregivers report having difficulty finding time for one’s self (35%), managing emotional and physical stress (29%), and balancing work and family responsibilities (29%) (NAC, 2004).
- About 73% of surveyed caregivers said praying helps them cope with caregiving stress, 61% said that they talk with or seek advice from friends or relatives, and 44% read about caregiving in books or other materials (NAC, 2004).
- About 30% said they need help keeping the person they care for safe and 27% would like to find easy activities to do with the person they care for (NAC, 2004).
- Half (53%) of caregivers who said their health had gotten worse due to caregiving also said the decline in their health has affected their ability to provide care (NAC, 2006).
- Caregivers said they do not go to the doctor because they put their family’s needs first (67% said that is a major reason), or they put the care recipient’s needs over their own (57%). More than half (51%) said they do not have time to take care of themselves and almost half (49%) said they are too tired to do so (NAC, 2004).